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“It’s only by talking, sharing experiences, that people without GPP will understand what it means”

The content presented on this website contains suggestions to help you manage your GPP.

Please discuss with your doctor what is best for you.

How do I explain generalized pustular psoriasis (GPP) to the people around me?

Since generalized pustular psoriasis (GPP) is a rare, life-long condition, most people have never heard of it. Being open about what you’re going through can help your friends and family understand — and it may help you feel better to share your experience.

Here are 4 easy ways to explain GPP to the people around you:

talking about generalized pustular psoriasis: a condition to the inmune system
It’s a condition relating to the immune system
talking about generalized pustular psoriasis: not something can catch by touching
It’s not something anyone can catch by touching me
talking about generalized pustular psoriasis: unpredictable flares
It’s unpredictable and may happen at any time
talking about generalized pustular psoriasis: ongoing symptoms
I may experience ongoing symptoms

You may have to tell someone at your job that you might miss days of work when you have GPP symptoms, even if your skin looks OK. You may have to tell friends that you need to cancel plans without notice when GPP flares come on suddenly. And it could help to share how you feel about physical intimacy with your partner.

How do I build a support network?

Different people make up different parts of your network. With help from doctors, friends or family, you can manage your generalized pustular psoriasis (GPP) symptoms.

talking about generalized pustular psoriasis: your support network
Healthcare team

Let your dermatologist or general doctor know if you have feelings of anxiety or depression, as they could recommend a mental health professional or support group to help you.

Living with Generalized Pustular Psoriasis: spend time with loved ones
Loved ones

It may be hard to open up to friends or family, but letting them know how GPP is affecting you socially, physically, and emotionally may help them better support you.

talking about generalized pustular psoriasis: GPP community and resources
GPP community and resources

Local psoriasis groups or rare skin condition organizations can help you find like-minded people who understand what you are going through.

How do I actively advocate for myself?

Be clear about all your symptoms and the impact of generalized pustular psoriasis (GPP) on your daily life

Discuss any symptoms you are experiencing with your dermatologist or doctor. Listen to what they say and consider asking questions so your generalized pustular psoriasis (GPP) can be managed in the best possible way:

  • What treatment will work best for me and my GPP?

  • How soon can I expect this treatment to work?

  • Are there any side effects I should know about?

  • What are my options if this treatment doesn’t work?

  • What can I do if I still have GPP symptoms?

To help with this discussion, consider other questions you may have around the management of your condition.