The support everyone needs to get GPP-Confident
The content presented on this website contains suggestions to help you manage your GPP.
Please discuss with your doctor what is best for you.
How can I support someone with generalized pustular psoriasis (GPP)?
If you know someone living with generalized pustular psoriasis (GPP), there are ways you can help and support them. Reaching out regularly to ask how you can help is a good place to start. Here are a few suggestions:
You can help them keep a positive attitude and encourage them to partner with their doctor to find ways to manage their GPP. Most importantly, remind them that they are not alone.
Improving communication between you and the person you care for
Good communication with the person you care for who is living with generalized pustular psoriasis (GPP) is important. Here are some tips to improve communication between you both:
Healthy communication is also important to express when either of you may be feeling overwhelmed.
Caregiver glossary guide
Supporting the person you care for with GPP
Taking care of yourself as a caregiver
It can be easy to forget about your own personal health and wellbeing when you are taking care of a loved one or friend with a life-long condition like generalized pustular psoriasis (GPP). You have an important role in providing physical and emotional support, however, this can become overwhelming as your caring responsibilities increase. It is important you take care of yourself, because your wellbeing is a priority too.
Taking time for yourself also means you can provide the best care for your friend or loved one with GPP. Here are a few things you can do to look after your personal health:
In addition to your personal health, you need to give yourself time for things that bring you joy and allow you to take a break from caregiving:
friends or family
favorite meal or even a bath
However you practice self-care, it is important you have people who can support you.
Finding support
Getting support for yourself
Support groups are a valuable way to gain practical and emotional support from the experiences of other caregivers. These groups are made up of people who understand what you are going through or have gone through similar experiences. They provide an opportunity for people to share personal experiences, emotions and coping strategies. Here are a few benefits of caregiver support groups:
Consider in-person or online groups in your local area so you can find support that suits you.
You might also benefit from information available from generalized pustular psoriasis (GPP) patient associations.
Support groups can also be beneficial to the person with GPP that you care for. By joining a patient support group, they can connect with other people with GPP and share their experiences, coping strategies and feelings.
Authentically caregiving series
Looking after people who have a rare, life-long condition like generalized pustular psoriasis (GPP) can be challenging. This video series has been developed so you can hear first-hand from caregivers who understand what you are going through. Get useful hints and tips to help you look after yourself and the people you care for.
Acknowledging the role of caregivers
Explore the responsibilities caregivers face.
Finding your inner strength as a caregiver
Explore the responsibilities caregivers face.