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The content presented on this website contains suggestions to help you manage your GPP.

Please discuss with your doctor what is best for you.

Generalized pustular psoriasis (GPP) is NOT sensitive content

As a rare and life-long skin disease, generalized pustular psoriasis (GPP) can feel isolating at times. Because it can be difficult to find others with GPP in your day-to-day life, many people turn to social media for information, support, and to find a community of people who truly understand what they're going through.

But social media has other ideas - often blocking content about GPP - labeling it as 'sensitive'. 

At Boehringer Ingelheim, we believe this isn't a sensitive issue. In fact, depriving people of the support and understanding they need is stigmatizing and insensitive.

We are fighting your corner

Alongside specialists like Dr. Joel Gelfand, we are raising awareness of this issue. Watch Joel discuss the impact of social media's INsensitive algorithms.

The problem with social media algorithms

Current social media guidelines often block real-life images of GPP symptoms, labeling them as ‘negative’ or ‘triggering'. This limits awareness of the condition and makes it harder for people who are undiagnosed to recognize and understand their skin disease.

As a condition that affects just 1.76 to 124 people per million, GPP is already challenging to identify. It’s often mistaken for other conditions like plaque psoriasis, even though the two are distinct. This can lead to delays in diagnosis.

Your dermatologist benefits from social media too

Social media isn't just a powerful tool for creating communities and learning from others around the world. Your dermatologist is also likely to use social media platforms to share information with their peers, particularly with misdiagnosed and rare skin diseases like GPP. Others may use it to educate the public 
and increase disease awareness too.

Taking control: what you can do about INsensitive algorithms

Social media might try to censor the GPP community, but you should never censor yourself. Find tips for explaining your condition, building your support network and advocating for yourself here.

And why not share this page with your dermatologist? You could help them raise awareness of this issue among specialists across the globe.

Remember: GPP is not ‘sensitive’ content. 

Learn more about GPP

The patient's perspective

Nerea has lived with GPP since she was five years old. And over the years, 
her many hospital visits inspired her to train as a nurse. She now works in dermatology, where her own experience of GPP allows her to empathize with others who live with skin diseases. Watch Nerea discuss the insensitivity of social media's algorithms and the need for the 'raw truth'.

The professional's perspective

Watch dermatologist, Dr Torres, share his expert understanding of GPP. He believes that individualized treatment plans are crucial for this chronic disease, which presents differently between patients. Dr Torres also discusses the importance of a sense of community, which is crucial for emotional support and ensuring patients' voices are heard. This, of course, highlights the need for accessible, uncensored information online.